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Links and Resources


Here are some links to resources for additional information regarding patient registries and clinical trials. Some of the sites allow you to search current clinical trials for a specific disease and other sites only provide information.

Registries

Coordination of Rare Diseases at Sanford (CoRDS) - A partnership between the National Ataxia Foundation and Sanford Research, the CoRDS Registry serves people will all types of ataxia. We encourage individuals with FA to consider participation in this registry as well as the FARA patient registry.

Clinical Trials

http://www.curefa.org/network - Visit FARA’s website for more information about participating in a clinical trial and see a list of studies currently recruiting people with FA.

http://www.clinicaltrials.gov - ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. This site also has educational information about clinical research.

http://www.centerwatch.com" - CenterWatch.com is a Clinical Trials listing service. You can use this site to find a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA.

http://www.clinicaltrials.com - ClinicalTrials.com CLINICALTRIALS.COM is a source for comprehensive information for current clinical trials being conducted nationwide. This site has contact information for more than 30,000 health agencies and support groups across more than 3,000 cities in the United States.