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FA Global Patient Registry

Join The Registry

Information on Individuals Enrolled in the Registry


Welcome to the FA Global Patient Registry.

The purpose of the registry is to collect some basic information on individuals with FA. This information will be used to facilitate and expedite clinical trials and get us all closer to treatments for FA. Basically, this is a way for you to get your name and contact information to researchers who will be conducting clinical research trials. Recruitment for clinical trials can often take a long period of time especially for a rare disease like FA. Your participation in this registry could help speed up that process considerably, because your information would be shared with scientists and companies recruiting patients for FA clinical trials in the near future.

This registry is only for individuals diagnosed with Friedreich's ataxia.

Preparing to register: When you register you will be asked about your contact information and about your diagnosis. For example, there are questions about your age of onset and genetic testing for FA. For individuals less than 18 years of age, we request that your parent or guardian provide consent for entrance into the registry.

Information on Registry Participants

Number of Individuals Enrolled in the Patient Registry: 2879

Geographic Information on Individuals in Registry

expand United States1586
expand Brazil380
expand Canada116
expand United Kingdom88
expand Australia79
expand Spain70
expand India67
expand Ireland48
expand Italy43
expand France39
expand Sweden27
expand Greece24
expand Mexico21
expand South Africa20
expand Argentina17
expand Germany17
expand New Zealand15
expand Colombia14
expand Pakistan13
expand Switzerland12
expand Turkey11
expand Iran10
expand Netherlands8
expand Portugal8
expand Austria7
expand Lebanon7
expand Poland7
expand Romania7
expand Serbia7
expand Albania6
expand Belgium6
expand Slovenia6
expand Chile5
expand Croatia5
expand Norway5
expand Russia5
expand Cyprus4
expand Denmark4
expand Israel4
expand Bahrain3
expand Bulgaria3
expand dominican republic3
expand Ecuador3
expand egypt3
expand Morocco3
expand Egypt2
expand Jordan2
expand Qatar2
expand Seychelles2
expand Venezuela2
expand Afghanistan1
expand Armenia1
expand Bosnia Herzegowina1
expand Ceska republika1
expand China1
expand Costa Rica1
expand Czech Republic1
expand Denmark1
expand Finland1
expand Hong Kong1
expand Indonesia1
expand Israel1
expand Kosova1
expand Lithuania1
expand MOROCCO1
expand Mozambique1
expand Nepal1
expand PANAMA1
expand Paraguay1
expand Roumania1
expand Scotland1
expand Syria1
expand Uruguay1
expand Yemen1